Support Groups
This page contains links to other World Wide Web sites with information about support groups for parents affected by a birth defect. We hope you find these sites helpful, but please remember we do not control or endorse the information presented on these Web sites, nor do these sites endorse the information contained here.
Alliance of Genetic Support Groups
National Down Syndrome Congress
7000 Peachtree-Dunwoody Road, N.E. Building 5, Suite 100
Atlanta, GA 30328
1-800-232-NDSC or (770) 604-9500
National Down Syndrome Society
666 Broadway
New York, NY 10012
1-800-221-4602 or (212) 460-9330
National Organization for Rare Disorders, Inc. (NORD)
P.O. Box 8923
New Fairfield, Connecticut 06812
203-746-6518
Rare Genetic Diseases in Children Homepage
Sibling Support Project (for siblings of people with special health and developmental needs)
S.O.F.T. (Support Organization for Trisomy 18, Trisomy 13, and Related Disorders)
2982 South Union Street
Rochester, NY 14624
716-594-4621
The Compassionate Friends
P.O. Box 1347
Oak Brook, Illinois 60521
708-990-0810
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